About Me

My name is Cess. I am 33 and I live in Adelaide, South Australia with my wonderful and caring husband, Greg (also referred to as DH – Dear Husband), and our delightful little boy Christopher Steven.

In this Blog I write about being pregnant with Christopher and his progress with his issues with VACTERL Association. Christopher has the full spectrum of VACTERLS Association as well as having a Unilateral Cleft Lip and Cleft Palate.

VACTERL is an acronym for various anomalies that occur together.

V – Vertebrae anomalies.

A – Anal atresia or imperforate anus.

C – Cardiac (heart) anomalies.

T – Trachea anomalies.

E – Oesophageal anomalies.

R – Renal or Radial anomalies.

L – Limb anomalies.

S – sometimes added for Single Artery Umbilical Cord.

To be diagnosed with VACTERL Association, you need to have at least 3 or more of these 7 anomalies. VACTERL occurs in one in every 10,000 live births.

Babies with VACTERL are usually small, with a low birth weight and tend to have difficulties gaining weight, but have both normal development and normal intelligence. Their needs will vary from child to child as well as the severity of their anomalies. VACTERL is not related to a specific genetic or chromosome problem and is likely caused by multiple factors.

Once a child has been diagnosed with VACTERL, the most important thing is to identify all anomalies that the child is affected by and treat them accordingly.