Causing trouble again …

Christopher decided that it would be a really good idea to pull out his TPT. So he spent most of the day in Radiology getting it repositioned. Poor little bugger was so tired when I got in, from his adventures. Unfortunately, we think that his tummy was upset by the repositioning and he had a couple of bile vomits, which meant that all the tape on his face has to be redone. He hates having his face re-taped and he gets himself into such a state. It is distressing to see, but you have to do it. Luckily it doesn’t take too long to calm him down.

Christopher’s feeds are now up to 25mls per hour 22 hours a day. He is working up to a 4 hour break per day, so we will have at least one less tube for a short time for when we get home!

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