Countdown

Well its not long until Christopher’s Lip repair on Tuesday. Christopher has been really well this last week (especially since coming back from PICU). He has been happy and less squeaky. He loves having the 2 hours a day without his splints. This is when I give him his bath and he gets to kick and move his legs around. Christopher has also had his Diazoxide (for his Hyper-Insulinism) reduced from 8mg to 6mg, so that is great, hopefully we will eventually be able to not need it at all. Then he will lose his massive mono-brow, an unfortunate side effect is excessive hair growth.

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