Christopher’s Journey.

Christopher is once again, re-writing his story and failing to mention his plans to us!

He was due to have his lip repaired tomorrow afternoon, but with his GERD, he has been continually “micro-aspirating” his feeds, which have disrupted his breathing.

The Anaesthetic Doctor is not comfortable with putting Chris under a General Anaesthetic, with his breathing problems, especially seeing as he is already a high risk because of his cardiac problems.

So the gastrostomy tube has been pushed further down, past his pyloric valve (by-passing his tummy) so his feeds go directly into his small bowel, and hopefully reduce the reflux and aspirations. Hopefully, with this done he will be happier and his breathing will improve and we can get his lip fixed and get him home. Unfortunately this also means that Christopher coming home is also delayed by 2 more weeks.

His PIC line will also be removed tomorrow and a new one will be inserted the just before his lip repair, but under the one anaesthetic.