Christopher’s Journey.

Another stable day for Christopher. He is having a sleep study tonight to see what obstructions he may have, this will also give us more of an idea about what to expect when he comes home. We stayed with him whilst he was prepared for the sleep study. An hour and a half later and a while lot of probes and attachments ALL over his body, they were ready to start. Chris was really good. After the first 10 minutes, where he got a bit irritated, he was very calm and looking at everything around him, whilst they were sticking stuff to his noggin and legs. It was quite cute to see how interested he was in all the stuff going on around him.

Also had a chat with his TOF/Pull-thru surgeon Mr A.F. who wanted to be paged when I arrived today. He breezed in and breezed out again, with a very quick monologue in the middle, advising me that he is not satisfied with the pull-thru as the fashioned anus is too high for his liking, as well as his sphincter having moved behind some muscle. Mr A.F. also said that he wants to refashion Christopher’s bottom some months down the track. To be honest all this happened much too quick for me to think, reply or react. I am annoyed that this has come (to me) out of the blue and some 9 weeks after the event. I want to know why it took so long for them to come to this conclusion and why nothing was said to me prior. I am waiting for Lisa (Stomal Therapist) and Dr P.M. (Paediatrician) to talk to the surgeon and hopefully supply me with some further information about what is going on.