Christopher’s Journey.

Today Christopher and I met a lovely lady, Catherine and her 11 year old son, Ben. Her son has VACTERL too. It was lovely to meet such a sweet young man who has already gone through things that Christopher is yet to go through. Christopher also had a hearing test today. He had 5 probes stuck to his head and headphones over his ears. They tested Chris with sounds that ranged from 70db down to 10db and measure his brainwaves to work out what he can hear. Apparently, he can hear as low as 25-30db (70db is as loud as normal conversation), but didn’t register down to the 10db, but this more likely to be because of fluid in his ears, due to the cleft, rather than hearing loss. Chris will be referred to another Dr to investigate further. If it is due to fluid in his ears, he will have grommets put in when he has his lip fixed. This evening Christopher decided to raise his heartbeat to 170-180 (normal heartbeat for babies is 100-160) and he had a slight temperature as well as some diarrhoea, so as a precaution they have moved into a side room, by himself so he doesn’t spread any germs (if he has them). Half an hour later the little bugger’s temp was normal and his heartbeat down to 145-150!! I think maybe he was feeling a little starved for attention!! We have to wait and see what the blood cultures and the tests on other specimens come back as, before we worry too much.