Christopher’s Journey.

Christopher’s Gastrostomy leaked twice today, so we had to “splint” his gastrostomy tube to stop it from kinking and building up back pressure causing the leakage. In 4 hours, Chris went through 2 sets of clean sheets and 3 different outfit changes. All we needed was the catwalk! Christopher is also having daily baths and just loving it, he kicks his legs and enjoys being swished around the water. A Pulmonary Medicine Registrar with a student doctor, popped by this evening and asked if the student could examine Christopher as part of the his exam. I had no problem with this and watch as the student doctor had to work out what Christopher had wrong with him and then explain his findings to the Registrar. Unfortunately the student failed his exam as he didn’t notice that Chris only had 9 fingers and club feet. He did say that he thought Christopher had VATER Association (the same as VACTERL, but without the cardiac and limb anomalies). So he was so close to passing, but because he missed obvious physical problems, he didn’t. I guess because Christopher is a little on the unique side, it makes for interesting learning for the students.