Christopher’s Journey.

A good day today. Christopher was happy and very alert for most of the afternoon. Unfortunately his urinary catheter fell out, but it was popped back in with little fuss from the surgeons (they remembered him from last time )  Christopher shed a quite a few tears, but more likely for being poked and prodded, rather from pain. The Cranio-Facial Team popped over during their rounds and advised that because of Chris’s size they won’t fix his lip until he is 4-5 months old. We have an OUTPATIENTS (!!) appointment for the end of August to book in the surgery. Whilst we still have up to (approx.) 4 weeks until we go home, the nurses are starting to organise equipment for us to take home, as well as a couple of courses for me to do - like CPR and Oxygen training, in anticipation of the big move home.